Black Americans and Alzheimer’s

Submitted by Alzheimer’s Association

      Image of an older Black woman with another Black woman’s arms around her shoulders. Among Black Americans ages 70 and older, 21.3% are living with Alzheimer’s, a type of dementia that affects memory, thinking and behavior. Learn what the Alzheimer’s Association is doing to provide care and support and address disparities for African Americans living with Alzheimer’s or another dementia.

Quick facts

While older Black Americans are twice as likely as older Whites to have Alzheimer’s or another dementia, research hasn’t yet identified the cause. Higher rates of cardiovascular (heart and blood vessels) disease may play a role. Some studies indicate that after correcting for overall health and socioeconomic status, these differences disappear.

Only 20% of Black Americans say that they have no barriers to excellent health care and support for Alzheimer’s or other dementias.

Image of a caregiver providing support

Half of Black Americans say that they have experienced discrimination while seeking care for a person living with Alzheimer’s.

For more information, please see the Association’s Alzheimer’s Disease Facts and Figures special report on Race, Ethnicity and Alzheimer’s in America (PDF).

If you or someone you know has been diagnosed with Alzheimer’s or another dementia, you are not alone. The Alzheimer’s Association is the trusted resource for reliable information, education, referral and support to millions of people affected by the disease.

10 signs of Alzheimer’s

Learn the difference between symptoms of the disease and age-related changes.

Call our free 24/7 Helpline: 800.272.3900. The Alzheimer’s Association is here all day, every day for people facing Alzheimer’s and other dementia. Talk to a dementia expert now and get confidential emotional support, local resources, crisis assistance and information in over 200 languages. It’s ok if you don’t know where to start. Just give us a call and we’ll guide you from there.

Locate your local Alzheimer’s Association chapter.

Go to Alzheimer’s Navigator™ to create customized action plans and connect with local support services.

Resources for people living with Alzheimer’s: Learn more about your diagnosis, what to expect and ways to navigate everyday life at each stage of the disease.

Resources for caregivers: Learn how to prepare for caregiving and sustaining your own mental, physical and emotional health.

 

Participate in a clinical trial

Image of a Black doctor providing care to patient Another way to take an active role in the health care of someone living with Alzheimer’s or another dementia is to participate in clinical trials, or ​​research studies conducted with human volunteers to determine whether treatments are safe and effective.

Among Black Americans, a history of exclusion from medical trials and a lasting history of discrimination from the medical establishment, including but not limited to the infamous Tuskegee syphilis study, contribute to high levels of mistrust of clinical trials. Nearly two-thirds of Black Americans (62%) believe that medical research is biased against people of color.

 

In Alzheimer’s & Dementia Conversations: Changing the Face of Research, a webinar hosted by Beverly Berry from the Alzheimer’s Association, three expert panelists discuss how to build trust and remove barriers to greater Black participation in research. It features the Rev. Dr. Ruben Warren, former director of the National Center for Bioethics in Research and Health Care; the Rev Dr. Ann Marie Bentsi-Addison, senior director of faith-based initiatives at NYC Health + Hospitals; and the Rev. Dr. Miriam J. Burnett, medical director for the International Health Commission of the African Methodist Episcopal Church.

Volunteering for a research study may benefit you directly and help researchers find a new treatment or a cure. Learn more about participating in research studies and finding a clinical trial that makes sense for you.

More on clinical trials:

*New IDEAS: a new clinical study from the Alzheimer’s Association and the American College of Radiology on mild cognitive impairment (MCI) and dementia. At least 4,000 of the planned 7,000 New IDEAS participants will be Black or African American and Hispanic or Latino.

*TrialMatch: a free and private Alzheimer’s Association tool that connects individuals living with Alzheimer’s, caregivers and healthy volunteers to clinical trials.

*Alzheimer’s and athletes: a blog post from author, researcher and former NFL player, Dr. Robert W. Turner II describing the impact of dementia on his family, his work as lead researcher for the Brain Health & Aging Study and how the Alzheimer’s Association’s partnerships are helping to advance research.

Volunteer in your community

Unforgettable: A play about the lived experience of Alzheimer’s

      “Unforgettable” shows how a Black American family comes together when the grandmother develops signs of dementia.

You can help people living with Alzheimer’s and dementia and their caregivers by becoming a volunteer. There is a range of community-based roles where you can lend support, such as:

Community educator.

Faith outreach representative.

Public policy advocate.

Event volunteer.

And more.

Learn about the volunteer opportunities at the Alzheimer’s Association.

Watch these panel discussions from the Association’s Northern California and Northern Nevada chapters about the experiences of Black men and women living with dementia and their caregivers: Black Men and Dementia and Black Women and Dementia: Two Sides of the Story.

Association partnerships

At the Alzheimer’s Association, we believe that diverse perspectives are critical to achieving health equity — meaning that all communities have a fair and just opportunity for early diagnosis and access to risk reduction and quality care. The Association is committed to engaging underrepresented and underserved communities and responding with resources and education to address the disproportionate impact of Alzheimer’s and dementia.

The Alzheimer’s Association strategically partners with national and local organizations to advance health equity, access to Association resources and inclusion in the fight to end Alzheimer’s. Partnerships dedicated to serving Black Americans include medical associations, faith-based organizations, Black Greek Letter Organizations and more. Learn more about our partners and partnerships as part of our commitment to diversity and inclusion.

 

About Carma Henry 26594 Articles
Carma Lynn Henry Westside Gazette Newspaper 545 N.W. 7th Terrace, Fort Lauderdale, Florida 33311 Office: (954) 525-1489 Fax: (954) 525-1861

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