The most exciting news is that the National Institute of Health’s Cure Sickle Cell Initiative is making progress on genetic therapies for SCD that are potentially curative. While these treatments are not available to everyone, there is real promise that more accessible genetic cures could give people living with SCD the pain-free lives they deserve. With the Food and Drug Administration accelerated approvals of two new SCD drugs, it is an encouraging momentum for more life-saving new medicines on the horizon.
Browsing: sickle cell disease
The Cure Sickle Cell Initiative seeks to develop cures for a far broader group of individuals with the disease, and it is initially focusing on gene therapies that modify the patient’s own hematopoietic stem cells (HSCs), which make red and other blood cells.
Dr. Kevin Williams says that sickle cell disease is a serious, lifelong condition that a person has from birth, you don’t “lose” or “out-grow” it over time.
National Newspaper Publishers Association (NNPA), a trade association of more than 200 African American–owned community newspapers from around the United States, are collaborating to raise awareness of sickle cell disease, a lifelong and debilitating genetic disorder that affects red blood cells
It’s important that you talk to your doctor, openly and regularly, about sickle cell disease, and learn how to best manage your condition and reduce the complications
The Sickle Cell Disease Association of Broward County, Inc. (SCDABC) hosted its 35th annual appreciation banquet
affecting people of all races, not just African Americans